In September 1980 I had my first onset of Guillian Barre Syndrome. I ended up completely paralyzed from my feet to my forehead. I’ve had many people asking me to share my experience. I found out after I had a second round of Guillian Barre Syndrome because I was around a sick child. It was at this time that my Dr’s figured out that I have the CIPD variant of Guillian Barre Syndrome. Normally when you have Guillian Barre Syndrome, you will never have it when you’re getting better. Over the next week or two, I will be taking questions from anyone and I will do my best to give my experience.
Here’s a short video that will explain what Guillian Barre Syndrome is in a medical sense. But, I will be answering questions that pertains to my experience.
For the past year I haven’t been feeling good at all. Normally when I get sick I bounce back pretty fast. Since May is Guillian Barre Awareness Month, I decided that I will do things a bit differently. I have written other blogs about my experience and I will put links to all of those blogs, that way you can read them all. Since I will link all of the blogs and that way I won’t be repeating the same old things.
But, I’m going to do a Q&A type of blog post. If anyone has questions, I will post my answers on here in May.
So, you can comment on this post or you can email your questions. My email is firstname.lastname@example.org