Prayer Meetings

Today I was thinking about church and prayer meetings. 

When we first moved to St. George, we found our home, church and a grocery store. We had to laugh at the locals because they said the grocery store was all the way across town. Coming from Phoenix, AZ I was expecting a drive. Nope, it was just a mile or two if that. Anyhow, back to my thoughts on prayer. 

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For those who have read my past blogs, you will know that I went to a Nazarene Church in Willcox , AZ. I was baptized in that church and most of my fond memories of church go all the way back to the Nazarene Church. When we moved here, there was no Nazarene Church so we ended up at St. George Community Church. I have no regrets for the most part since I feel just as at home there as my church I grew up in. In my heart, I think I will always be a Christian that has the ways and beliefs I was taught in the Nazarene Church.  

The reason why I got on this topic is because of a message my brother in law got from a guy at my church that they were doing a Mens Prayer group. 

When we first started at the church it was Sunday Services only and no evening services. I think for most churches in our area that is still true. I believe there is only a couple churches that meets on Sunday nights. 

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A Real Alter

The churches I always went to had a Weds Evening Service. The service was different than the ones on Sunday. On Weds if focused on prayer. The service for the most part would last about an hour or so. Depending on how many prayers were being said. We would start with a opening prayer, song, a short message or whatever else the pastor wanted to share. Sometimes it wasn’t a message, it would be whatever was on his heart at the time. Then we always ended in prayer. 

Our church had actual alters for prayer. Those people who could kneel would kneel, the others would come closer and pray. If a person wanted to say a prayer and share with others they could do that. There was no time limits or limits on what to pray for. If they were like me where I didn’t like to pray out loud, I would pray silently and listen to the prayers of others. 

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The alter at my church now is in the back behind the pulpit…

When I first walked into our church here in St. George, I have to admit I looked around for the alters to pray. To me it didn’t seem normal to not have one. I did finally ask someone once we decided it was the place to be. They told me that they have an alter in front. OK! Now I’m dumbfounded over how I could miss alters in front.  I know I don’t have the best ability of paying attention. But there was no alter that I could see. Then they pointed it out to me. They called the table that says ” Do this in Remembrance of Me” an alter. I’m sure I gave them the ‘what the heck are you talking about” look.

ImageOur church had that one too. But that is where we put the Bible and candles and whatever else that was suppose to go there. I didn’t see how people could kneel and pray at that table that is taller than my dining room table. It must still bother me, because it doesn’t seem right that there isn’t a designated place to pray and to come forward to pray. It must just be a me thing because nobody else mentions it. 

Some say you can pray in the pew or where ever you are and that is true. I can’t argue there. But there is something special about going before the Lord in prayer and joining others that are praying. 

I don’t know if a Weds night prayer service would work too good since most are older people who don’t drive. But I think it would be cool to do that. 

 

My Pug Jasper

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Jasper

Pugs are those cute little dogs that that have a smashed in face and snores a lot. Today I was reading an article that was in a magazine that our vet sends out He has a pug too and I’m, guessing his is fun too. When I got to reading about pugs in the article, I had to laugh. Basically this is what it said in a nutshell. “Pugs have a fairly even temper, and while they can be quite perky, they are not generally a breed that barks to excess. They are protective, and make good watchdogs due to their attentive nature. Pugs are not generally combative, and do well with strangers and other animals in the house. Pugs are loyal to their owners, and can easily adapt to their owners’ schedule since they are creatures of habit.” With Pugs you also have to be careful when it comes to exercise and the heat. They can get over heated very easily and can die because of it.

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He may look sweet, but he could double as a Dr Jeckl and Mr Hyde.

Now, the reason I got on this topic is because I have a pug. His name is Jasper. When they were describing the traits of pugs, I was wondering if they missed the mark. My pug does meet many of them/ But when they say pugs don’t bark excessively has never met Jasper. He can out bark the best of them. Jasper owns me; he is loyal and gets along with others. But when I come into the house he is yelling at me pug style. He is giving me the look.  You know the look that means you are in trouble. When I take a bath he is there too. I will attach a video of Jasper when I walk into the house. He lets it known to everyone that he is my dog. For a good five minutes he is barking. If he doesn’t see me when I come in, I will hide from him, lol. But if he doesn’t see me, he runs from room to room until I show up or he sees me.

There isn’t anything calm about him unless he is eating or sleeping. I do have a Pug and Pekingese mix dog that loves to stir the pot. He antagonizes Jasper and Patsy. Parker was rescued from a hoarder and it took a while for him to get use to things. But he terrorizes the house. He runs for awhile and knocks chairs over and turns every carpet in the house over. He should have been called Turbo. I think he picked up the Pekingese side. When reading the article, I’m thinking that they can’t be talking about Jasper and Parker, because they are mouthy. It is true that they are friendly and easy to get along with. They are stubborn and can easily get what they want, i.e. scrap of food. They can get chunky so table food should be limited. Jasper is like a Garfield in dog clothing.

jasper4In the article they talked how calm they are and they get along wonderfully with kids. They did get that partially right. Jasper and Parker both love kids, people and anyone who gives attention. The word calm in no way describes my dogs. I guess when I describe my pug, I think of me. He loves to be loved. He likes to talk back and is stubborn. Both of our Pugs are very outgoing. They can try your patience when trying to train the He is the perfect dog for me. Here is a video of him barking at the TV.

Crankiness, Marathon and God’s Grace

ImageThere was something that I noticed about myself at church. Well, besides being awake that is, lol.

I noticed that I can get pretty obsessive about things. I had my power point done and then someone went to change the settings and I could see the perfectly put together display falling apart in front of my eyes. I twas not impressed. Thankfully Ryan came to the rescue…

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This is in my back yard… Here the runners are coming by the thousands

Then I was really tired today. Which isn’t something new. But yesterday I took pictures of the St. George Marathon. The runners come right past my house so it gave me a first hand chance to take pictures of them. I was glad I did. As the day went on and pictures were being tagged in the album where I posted them at on Facebook people’s comments came.

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This couple was awesome. They were there to cheer each other on.

One of the pictures had comments from family members who wasn’t able to get here to see their grandfather run the 26.2 miles. I have nothing but respect and awe for some of these people that get out there and do this. The course here in St. George is a pretty tough one and they all endured to the end and holding each other up.

Because of me taking all of these pictures till like 1 in the afternoon, I was exhausted. I came back in the house to lay down yesterday and today I had to after church too. But I find that I get very cranky when I’m tired or overly tired.  Even though most of my close friends and family will attest to my bit of a cranky side, lol. Back to my power point not looking like it is suppose to be kinda threw me off kilter, lol. Which I kinda feel bad because our new pastor was here today for the first official sermon. Which I have to say was awesome for his first one in St. George.

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ImageHe hit on the topic of works and deeds. And how we faith is in Christ Alone, not in our deeds. I do think that when we live our life for Christ, we want to do things as Christ would want us to do. But our Salvation isn’t dependent on those works and deeds.  For me it is natural to want to help others and do good because others have done that for me. Because of my relationship with Christ, I would to please Him and I’m a different person because of that. I can do all the good deeds in the world, but that won’t change my destiny if I don’t have that personal relationship with Christ.

ImageWow, I’m pretty impressed with this post, I was able to cover anal behaviors, crankiness, St. George Marathon and God’s Grace all in one post. Hmmmm! And if you notice it all ended with God’s Grace and a personal relationship with Him. If it wasn’t for that, I would be in trouble when it comes to those moments I want to clobber someone on the head. I may not physically, but thinking on it. Then God has a way of bringing me back to reality and letting me know that He is there and I need to cool my jets, lol.

All in all it was a good day and I really enjoyed the sermon and seeing everyone at church.

Fall Has Arrived

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There is a small breeze and perfect temperatures around here. For me this is the beginning of no more 100 degree plus days.

When I think of fall it reminds me of peace. All around I can see the changes of the leaves and the cool breeze carrying them away.

Growing up, we would rake up the leaves and then jump into the piles. I find it sad that the times have changed. People have riding lawn mowers or they hire someone to get them raked up. Now granted it Is time consuming, but it was a lot of fun jumping into them and you could smell the leaves. I know that is weird. But there is a smell when it comes to damp leaves.

I did a article for our churches newsletter about the fall and how pretty it is. Even though the leaves are falling, there is something peaceful when you watch a leaf flutter in the wind and finally land. I was thinking about the article and how much I miss doing the newsletter. I no longer do it, but I loved it when I could make it alive with things happening here and now. The woman at church that does it does a good job though. If she ever wants to give it up, I think I will ask to take it back over. I miss the busy work and the designing of things. It gives me something to do and makes me feel that I am giving since I don’t have much money for tithing.

I was thinking after I gave it up that I may regret it. I loved it when people were waiting and wanted to see what was going on. When you see people standing around and talking about how the newsletter looked and such, it made me feel good. Even though there was one little old lady at my church that would take it upon herself to mark each and every mistake I made.  I didn’t realize at the time I would miss doing it.

Right now with my health the way it is, it would be a welcomed distraction. It gave me the chance to make a difference and fill my time as I do my medicines. 

OK! Back to leaves and the purpose of this blog post. In my mail today I got a very special package from Ruth. She sent me leaves from Missouri. I know it seems like something small and not a big deal. For me it is awesome. I love the idea that these leaves will work for my door wreath. What makes it even better is that Ruth took the time to select the best leaves and send them to me.  My husband Chuck tells me I get excited over stupid stuff. The way I see it is that God created these leaves and nature. They remind me of living in Indiana. I would search for unique leaves and fun things for hours.

I’m very excited that summer is over and that the fall is here. Now I can go outside with my cup of coffee and enjoy things around me. When it is overly hot, I’m miserable for almost all summer long. The cool nights have been awesome.

When I go outside I can see the stars, hear the crickets and enjoy the peace. I will have to do a video of just the sounds around me. That will be when there are no cars driving around. If you haven’t gotten the chance to do that, you should. It is very relaxing. It makes it nice when you can take a friend with and bring hot cocoa and just sit and take in the beauty around you.

Pretty soon I’m going to go shoot some pictures of the fall leaves. I can’t wait. I asked my pastor’s wife Kathi if she would like to go with since she loves nature too. It will be a lot of fun. 

Brace Yourself!!!

ImageJust this second I decided I needed to do something. The urge was so strong that I had to think twice about it for a couple seconds. I know this may confuse some people and the topic may even scare some away. So are you ready? 

I hope so, because like it or not, this is it. The moment has come! No more putting it off till tomorrow! So take a deep breath in and exhale, breath in and exhale… OK!  Here goes!!!!

You Ready? 

You made it to the end of this post and was able to breath in and exhale and nothing bad happened. 

Have a blessed day and remember God loves you and Jesus died for your sins. 

 

WHEWWWW– See it wasn’t that bad after all huh? 

Dr’d Out

ImageDr’s and more Dr’s! I went to my pain management Dr and once again they were stressed and worried about my blood pressure. My blood pressure on this visit was 220/113 or something like that. When I seen the blood pressure, I was thinking that my Dr was going to send me back to the ER to get treated. By now this is becoming a routine. The kind of routine that is basically worthless because there isn’t much they can do to bring it down. It’s one of those things that is what it is.

Because of the Myasthenia Gravis, my muscles don’t work like they should which puts extra stress on organs and such. The medications they give me for the blood pressure in my opinion is just a waste of time because they are doing now good. But then when I ask them about the meds, they tell me that without them my blood pressure would be much higher. Maybe they are right in some weird way.

IImage was telling my one Dr that what bugs me is that the medications he gives me is making me gain weight. He told me as he was writing out the prescription that I will notice weight gain and swelling. But I needed this medication to prevent a stroke. I get that it is important to take medicine to prevent a stroke and that my Dr’s are obviously concerned over that. But in my brain, I’m thinking the weight gain can also be dangerous when it comes to my blood pressure.

ImageI did talk to one of my Drs about this and he understood where I was coming from. Not that he couldn’t do anything about it, but he understood. You see, my way of thinking is that if you have additional weight and I have gained more than my share of weight it causes your heart and lungs to work harder. If it is causing your heart and lungs to work harder,  it is a given that it will increase your blood pressure. So there is the weight gain issue and then there is the pain issue.

My pain management Dr has been really good at trying to come up with a good pain management plan. But there is only so much they can do because of the way my muscles work or should I say don’t work. If the medications I take become to sedative than my breathing becomes too shallow. They can’t do surgery because I can’t be knocked out because I don’t wake up. Plus as soon as I go to sleep my O2 drops into the 70’s even with oxygen. If something could be fixed, it couldn’t be done in surgery unless they could do it as a local.

I don’t want to seem like I’m complaining because I try not to do that. But I do have to say that I am getting Dr’d out. The pain management Dr now wants me to see an Endocrinologist. To me, it is just another Dr that won’t be able to do much about what is going on because my body fights itself since what I have is auto immune. It’s a vicious cycle for the most part. When I think of adding another Dr to my medical team, I think of how much it is a waste of time.

When my pain management Dr asked how I deal with this and all the headaches and other medical things I had to give all that credit to God. The Dr’s give medicine and diagnosis’s that they can’t do anything about, change or make better. It isn’t something that is going to go away. But I know without a doubt that God is there. I know He has a much better plan and I guess I’m not really worried about my medical things in the same way my Dr’s are and that is because of my faith.

Now, there are days that God and I have to have some one on one discussions and I’m not in the best of moods. I don’t like the whole Job situation. Job in the Bible was tempted and pretty much lost everything and was broken by Satan. But he remained loyal to God. He was rewarded in the end, but he sure went through a lot to get to that point. I have to say that is one of my least favorite books in the Bible at times.

ImageI don’t believe that God wants us to suffer and that He has a plan. There are times I get angry with God and wonder what the heck is going on. But I don’t lose faith in Him because I know that the end result is worth anything we as humans go through.

When I go into my “I want to have a pity party mode”, I think of those who are children that are facing death and uncertain outcomes. I think of the parents who are sitting there holding the hands of their child as the cancer monster claims their child’s life. And yet, they remain faithful and strong in knowing God is there with them. I can’t begin to understand that kind of horror. I can’t begin to understand going through that without knowing God is there.

I had a friend one time tell me that I needed to have more faith, not just talk about it, but to give it all to God. I thought about that statement for a long time and it really bothered me and still does on some levels. It was almost like she was saying that it isn’t OK to be angry to ask God what is going on. God knows how I feel and what I am thinking. Even when I don’t know or I don’t put it in the right words, He knows.

Each person who goes through things deals in a different way. Sometimes that is with anger, resentment or maybe running away from the situation. These children and parents can’t run away from the situation. People that have horrible diseases can’t run away. And I believe it is Ok to ask God why. Asking God why doesn’t mean you don’t trust Him or have faith. It is because someone may not understand and they need to know that God or someone is listening.

It’s because of the strength of these children and their families that I can say that what I deal with is very small in comparison. God doesn’t give us more than we can handle. We may think we can’t and many times I do think it is beyond our ability to deal with these things on our own. For me atleast, I need to know that God is there. My favorite verse in the Bible is Psalm 46:1. And that verse says ‘God is my refuge and strength, ever present in times of trouble.” That verse gives me hope. It tells me that God is always there and that He will never leave me.

How people that don’t know God and have the certainty that God is there no matter what is difficult and sad for me. This world can destroy and break a person if they don’t have someone like God on their side. To think about going through health issues, death of loved ones, and a whole basketful of other things that can and does happen without God is hard for me to imagine. If I didn’t have God and know that Christ died for me and that I was forgiven for my wrong turns and bad choices, life wouldn’t be worth living.

To me, life would be senseless if there was no hope. Because Christ died for me, I have hope and peace. It doesn’t mean I don’t get angry and upset. It means that I know that no matter what God has my back. And the very thought of thinking that there is no God or that He isn’t there through good and bad is more of a nightmare to me. 

I would say that I have a Dr in almost every specialty when it comes to my medical care. But the Dr that really counts is Christ. He is the one that can heal in whatever sense He chooses. Healing isn’t always curing. Healing can mean a variety of things. To me the ultimate healing is when you get to heaven and there is no more pain, suffering, tears and Christ is present. In this world there will never be complete healing. Someone may go into remission or symptoms cease. But everyone will die at some point. Nobody leaves this world without dying unless Christ comes again and we are taken. Christ being the perfect man had to die on the cross in the most horrible way. But He lives now.

I do have to admit that because of my medical things it has opened many doors and given me many opportunities to witness to people I would have never gotten the chance to witness to. When the test results shows one thing and I’m still here and defying what the Drs think should be, I can honestly tell them that I am here because of God’s grace. God has a bigger plan than anyone can comprehend. I don’t understand and I can’t begin to understand what is going on when it comes to God. Our minds can’t understand and grasp that kind of power and love. We were born into sin and we will die because of sin. But we will live because of Christ and the blood that was shed by Him on the cross.

ImageRight now I am frustrated because they want me to see another Dr that can’t do anything for the most part. So this post is a bit of a vent, but also a affirmation that no matter what any Dr says I have a better physician that knows what is what and He already has the test results and He didn’t need a MRI, Sleep Study, Echocardiogram, Cat Scan, Spinal Tap, Blood draw and whatever other test Dr’s may say needs to be done.

I will close this post now since it was longer than I wanted It to me, but I wanted to voice my thoughts and opinion. And since writing is what helps me more than pills, I will take you all along on my journey. Thank you all for letting me vent and share with you all… 

When I Grow UP

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paisley1I was watching a video on Andrew’s Angels Facebook page. They posted a story about the whites. The father (Heath White) succeeded in every aspect of his life previously. And now he was told that the baby he and his wife were expecting was going to be born with down syndromes. Their little baby girl was born in 2007 and wasn’t prepared to raise a daughter with a disability. It took him awhile to accept this little baby. She wasn’t part of the plan? She wasn’t perfect? He was a runner and competed in marathons all over the world. He wanted his wife to have an abortion and now he runs races with Paisley. I will include the video of his story with Paisley. Check Out the Video!

Then my brain started rolling around ideas on what I wanted to be and what I would never be because of getting GBS and Myasthenia Gravis. When we are children or we have children we also have dreams. I had my idea of what I wanted to be when I grew up. I wanted to join the Air Force and go into the medical field. I also wanted to be a missionary in Africa.

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I read a book about these missionaries in Africa and the difference they made in lives of those they didn’t know. I wanted to make that kind of a difference to someone. My heart went out to these people who had nothing. And the missionaries spoke of how enriched their lives have been because of their experience. That was something I wanted to do and my heart was set on it. But that wasn’t in the cards.

Instead my life changed in a whole other direction. I ended up getting married at 17 and had my daughter when I barely turned 18. Originally my plan was to do the Air Force and Missions before I was 22 or 23 and then get married, have kids and live happily ever after. By the time I was 28 my life would be set in stone and all is well in the world. Now as an adult and parent, we all probably know that things don’t go as planned. I can’t actually say that my life turned out bad, because I have been blessed in many ways I never thought a person could be. As a child I couldn’t see what was real or what was part of a fantasy.

I never joined the Air Force. I never went on a mission to Africa. I got married at 17 and pregnant. I had my daughter at 18. If a stranger were to look at how things turned out, they would think I made a lot of horrible choices and that my life was ruined. That would be very far from the truth. If I wouldn’t have gotten pregnant when I did, I may never have had a child on my own due to medical problems. I ended up with Guillian Barre Syndrome while I was pregnant. From the outside looking in, you would think that my life would amount to nothing. Again, that is far from the truth.

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Beckiah (Red shirt) and Jessica (Black Shirt)

Because of my mistakes I had a beautiful daughter named Jessica. I am still married to her father. It has been 33 yrs this October. I did end up very sick and was told by my pastor that I made mistakes, but God can make something good out of the bad we do. And he was right. Since I never could get pregnant again, we ended up adopting a daughter that is just 4 months younger than Jessica. I wanted to stay home and be the mom and I babysat. I babysat for Beckiah and at the age of 7, she became our daughter.

Just like the father who had his life planned out. He was expecting a perfectly healthy child and a life that didn’t have bumps along the way. But that isn’t how life works. We are given bumps, trials, tribulations and what I find exciting is we are given grace and forgiveness. I would never have picked the life I have if I was given a choice way back when. But now, I wouldn’t trade it for the world. My thought is that things may not be just like I want, but God knew and knows what I needed. And I still have that desire to go on a mission. But I have come to the conclusion that we all live in a mission field. We don’t have to go out of the country to be missionaries.

Heath White grew to love his daughter and eventually he looked at her and knew she was perfect. She had a future, even if it wasn’t the one he wanted for her. He is in the middle of writing a book to his daughter, which is awesome.

Basically, I will leave with this thought. Even the grandest plans and most perfect people will fail. That’s because we are human and we have human emotions. God has the perfect plan for our lives.

Mesothelioma Awareness Day

I’m doing a re-post for; Mesothelioma Blog 

The information below is from Emily Walsh’s Blog. As the Community Outreach Director for the Mesothelioma Cancer Alliance, Emily Walsh dedicates much of her time building cancer awareness through social media and blogging. She is passionate about helping veterans and their families learn more about the lesser-known health risks from military service.
Read more: http://www.mesothelioma.com/blog/authors/emily/bio.htm#ixzz2g1zhyh37

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Please check out her site and learn more about Mesothelioma.

Mesothelioma — a long word you may have heard on a commercial or two, but do you know what it means? This rare and deadly cancer is sadly lacking awareness. In honor of Mesothelioma Awareness Day this September 26, read on for the top 8 things you don’t know about this cancer, but should. Then share them. The key to saving lives starts with education.

1.Mesothelioma M is caused by asbestos exposure. Asbestos is a naturally occurring mineral that is invisible to the naked eye. Once inhaled, these fibers may infect the protective lining of the lungs, abdominal cavity, or cardiac cavity.

2. No amount of exposure is safe. Just exposing yourself once could put you at risk for developing the disease later on in life. If you were exposed today, you may not be aware until 2043, as the average latency period is about 30 – 40 years.

3. Asbestos was once used in more than 3,000 consumer products. These include household items, some of which may still be in use. Some of these even include hair dryers, crock pots, and cigarette filters.

4. It can be found in many older homes, schools, factories, and commercial buildings. Homes built prior to the 1970’s, along with a myriad of public buildings still could potentially contain asbestos because of the materials used in the original construction.

5. Asbestos exposure is still the LEADING CAUSE of occupational cancer in the US. Even after 30 years since the United States government issued stern warnings about the continued use of asbestos, many workers who were once exposed are now at risk of developing the disease.

6. United States Veterans are at the greatest risk. For many years, asbestos was used across all branches of the military. Many veterans and shipyard workers were exposed to high levels of asbestos from several different applications. US Navy veterans who served during World War II and the Korean Conflict unfortunately have the highest incidences of asbestos related disease, including mesothelioma.

7. Asbestos is still not banned in the US. Federal law requires the newly manufactured products contain no more than 1% asbestos. Although its use is regulated, roughly 30 million pounds are still being used each year.

8. Mesothelioma can be caused by secondary exposure. Family members of those who were directly affected by on-the-job asbestos exposure may also at risk of developing mesothelioma.

Read more: http://www.mesothelioma.com/blog/authors/emily/8-things-you-should-know-about-mesothelioma.htm#ixzz2g1wpETwn

Flu Shot or Not?

ImageFor me this is a no brainer. I don’t take the flu shot, pneumonia or the shingle ones, Some people are die hard fans of the flu shot and wait in long lines to get it so they won’t get sick. Well, for me that flu shot caused a horrible shift in my health back in 1980. This may be the one time of the year that I talk about my experience with Guillian Barre Syndrome and Myasthenia Gravis and that is because the flu season is around the corner. I was living in Texas at the time and suddenly I started to not feel good. I have always been very healthy for the most part. Yea, I would get the cold or flu, but nothing major. I was already in Texas with my now and always husband. Chuck was stationed at Fort Hood, so there I am. I was only 19 at the time. Physically I was in great shape. I would run on the average about 10 miles a day. I was in track and field in high school, cross country and a guard. I’m kinda short, so I wasn’t too good at that though. I loved sports and I especially loved running. It was my escape from all the bad going on in my world. Once I got to Texas, I got the flu shot. I was planning on going back to school since I quite in the 10th grade and to register there, I needed to get the shots. I should point out that I ran away from home and moved in with my husband Chuck. Thankfully that worked out. What didn’t work out is the flu shot. I received the shot and about a week later I was walking into town. It was only a mile away, so not a biggie at all.On my way home, I had to sit down and rest. My legs felt heavy and I was having a hard time breathing. Back then there were no cell phones and I didn’t know anyone anyhow. I did finally make it home in about an hour and I was having my doubts on if I would be able to make it back up the stairs to get into the house. It took me a few minutes, but I made it. I layed down for a while. Mary, Craig Carlocks wife then came home. We were rooming with Craig and Mary. She started getting upset with me because I was laying down. Following the walk into town, I have found I needed rest more and more. She was thinking I was trying to get out of helping clean and cooking and stuff. But I just couldn’t get up. My feet burned and it was like needles going through them. My legs were heavy and it was all I could do to go to the bathroom. About a week later, Chuck took me to Scott and White Hospital in Temple Texas. They wouldn’t see me since we weren’t married and I was a minor. So they sent us home. Things weren’t getting any better. We did move out a week later and got our own place. It was a very tiny trailer that was about 35 feet long and 12 feet wide. That ended up being a good thing. But we moved into that trailer and a week later I was on the floor and unable to get up and walk or call for help. I was there all day long. I couldn’t raise my arms, move my legs or anything. So off to the hospital again. This time we went to a different one. Once we got to the hospital in Killeen, Texas, the Dr seen me and the first question was if I had taken any drugs. I found out this was a common question for people that were young. I told him no and that I didn’t drink or smoke. That wasn’t stuff I was into. Don’t get me wrong, I tried it, but that was about it. But he called a neurologist in to look at me and they immediately put me into the hospital. I was never in the hospital up to this point. They did a spinal tap and a bunch of other tests that freaked me out a bit. They asked me if I have been around anyone sick or if I took the flu shot. I had the flu shot about 2-3 weeks earlier and there was a little girl that was sick around me. But it wasn’t close enough to me. They came back into the room and told me that I had what is called Guillian Barre Syndrome. That alone is a mouthful to say. They tried to explain it to me. All I knew is that I was 17, was in perfect health and now paralyzed from the feet up to my forehead. I couldn’t even blink and people couldn’t understand what I was saying. Guillain-Barre-Syndrome

  • Guillain Barre Syndrome is a rare and severe disease. It occurs after an acute infectious procedure. Guillain Barre Syndrome initially affects the peripheral nervous system. Normally it is acute form of paralysis in lower body area that moves towards upper limb and face. Gradually patient loses all his reflexes and goes through a complete body paralysis. Guillain Barre Syndrome is a life threatening disorder and needs timely treatment and supportive care with intravenous immunoglobulins or plasmapheresis. Unfortunately many people lose their lives without proper and prompt medical treatment. Dysautonomia and Pulmonary complications are the basic reason for death other fatal complications.

plasmapheresis-1The hospital in Killeen transferred me back to Scott and White Hospital in Temple, where they immediately snapped into action. I had to be on a ventilator and was completely paralyzed. I couldn’t even pick up a pencil, raise my hand, blink my eyes. There was nothing. They called my parents for permission to treat since Chuck and I weren’t married. We were planning on it, but wasn’t yet. My parents did give permission. But they didn’t give permission for the Plasmapherisis (Description at End of Post) or the IVIG.  It takes out the unhealthy anitibodies and cleans the blood.  It is a very costly treatment. I think it was a fairly new treatment option back then. But they declined that. My Drs did say that over 80 percent of those who get GBS fully recover. I would like to have a chat with those Drs now and let them know they are wrong. After a long time in the hospital I was released. My husband and I decided to move up the date for getting married. We got married on Oct 30th, 1980. We were going to get married on December 14th so that family could be there. Our thinking though is that we had no insurance and I was going to be spending a lot of time in the hospital. So we pushed it up so I could get covered. Every month I was in the hospital for days or weeks at a time. I ended up also pregnant at the same time. So life was not easy for me or Chuck.

During the day time when I wasn’t in the hospital, I had to go to someones house and my husband had to carry me into Lona’s home and he would lay me down on her sofa and when she woke up, she would assist me in getting dressed, try to eat and it took her and her husband to help me get to the bathroom. It was a good thing that I weighed only 98 pounds at that time.  I still couldn’t walk. It was months before I could stand on my own and write my name. I had to totally relearn it. If I would have had the plasmapheresis at the time, it would have shortened the healing process by months and I wouldn’t have the problems now. Or a good chance I wouldn’t. That little trailer that Chuck and I lived in was a God send. I was able to teach myself and Chuck was able to help me relearn to walk because I could hold onto the walls. the rooms was small and if I thought I was going to fall, there was something I could reach easily. He did all the cooking, cleaning and stuff for close to a year. Right before Jessica was born, I was able to do some things on my own and walk a short distance. I still got tired, but I could do it. I was afraid at the idea of having to take care of her and have the strength at the same time. All of this happened because of a flu shot that I received three weeks prior. Some people carry an antibody and when they get this shot, the pneumonia and maybe some others, it reacts with the antibody.

si2012_maGuillian Barre Syndrome is an auto-immune disease that attacks the healthy cells in the body. I will provide a couple links for anyone can read more about it. If you remember, I mentioned that about 80% of those who get GBS fully recover. I was not one of those 80% people. I ended up having the CIPD variant of GBS. It is the chronic form and has returned 3 times. Not as bad as the first time though. Thank God for that. It ended up destroying my immune system. I have many medical problems now and am on disability. I also have a second auto immune disease and from my understanding it is because my body fights itself and it is a chain reaction. But I also have Myasthenia Gravis. What I find interesting and I would like to have a pow wow with the Drs that said you fully recover, is that there are alot of people who end up with the CIPD and Myastenia Gravis. I think someone is doing research on that and why it is becoming more common. Now GBS hits about 1 in 300,000 people I believe. Not sure if those numbers changed. I have more problems with the Myasthenia now then the GBS. My Drs told me it is because of both of them, but Myasthenia is causing the havoc with my muscles around my lungs and heart. And those are needed so they pump blood right and to make sure there is enough oxygen of which there isn’t. There is a lot involved. One last thing and the MOST IMPORTANT- When I got GBS, I was not impressed. I couldn’t do what I wanted to do and have living my whole life this way. But I’m grateful that I had this at the same time. You may think I’m nuts, but hear me out. I don’t know where my life would have gone. Most people in my family has had problems with the law or are very unhappy.

god-strenghtBecause of me getting this I had to stay clear of drugs, cigarettes, alcohol and such. I have also had to learn to lean on God and trust Him. Without Him, I wouldn’t be who I am now. I have met so many wonderful people because of GBS and Myasthenia. I don’t see it as a curse or anything bad. It isn’t easy, but I know that God is there. Now granted there are times I have to have some one on one time with God and I get upset. I’m human and sometimes I don’t understand. But I know without a doubt that He has always been there for me. I don’t fear what might and could happen. I have peace because of my relationship with Him. I have a daily Bible verse affirmation that I say everyday and that is Psalm 46:1… It says ‘ God is our refuge and strength and ever present in times of trouble. I truly believe this. I believe that everyone has something going on with them. It may not be like what I have, but all have something. And I know that if I didn’t have my faith in Christ, I would never have been able to make it through. Who knows what tomorrow holds. My Dr’s didn’t think I would be around to write this post and all I can say is that only God decides when our time is done, when we have finished the race. Until then, GBS and Myasthenia Gravis or not, I will have to keep going. God has put many wonderful people in my life to help me with my struggles. I noticed this since I was very young.

0christian16There was this sweet lady named Mattie Bennett, she taught me to write poetry. Her son Harry Myers was my pastor in Willcox. His family was like my second home and his daughter Diane and I were best friends. I would love to see her again. I have my church family here in St. George. So many of them went out of their way and I thank them. I think of Chris B. Even when things were hard and everything was going crazy, she opened her house and she helped out in so many ways. Pastor Dean and Ruth pushing me and making me go to the ER to get help. Once there was just minutes to spare. I am pretty stubborn, but God knew I needed them at that point. My daughters and brother in law have come in a moments notice. They have family responsibilities and young kids, so I try to find others to come and save the day. God always seems to place the right people at the same time. My church family is my family… For those at church that may be reading this. I do want to thank a few people for going out of their way and helping. Those people would be Shirly Morganti, Sheryl Shaffer, Evelyn Roam, Lisa L (Cant spell her name), Barb Antrim, Sue and JP and so many others. My friend Jenn is there at the drop of a hat. Because of GBS and Guillian Barre Syndrome, I have had to learn to let others help. I’m not good at that and I thank God for that experience. I thank Him for always being there even when I couldn’t see I needed him and others. I guess my point is that no matter how bad things are, God has a plan. We may not always know what it is, but He does. As I leave this topic, I would like to say on the notion of flu shot or not. I don’t take it and I won’t risk taking it. My daughters don’t take it and never will. There are an awful lot of people who have died from complications from the flu shot or they have been paralyzed from it. Everyone has to decide for themselves if the risk is too high or not. I can’t answer that for anyone else but me. I have been dealing with all these medical problems, hospitalizations and so forth ever since that one flu shot back in 1980. It changed my life forever. I guess on a positive note, I didn’t get the flu that year. Links to Sites about GBS and Myasthenia Gravis- If you or someone you know has GBS- CIPD or Myasthenia Gravis. The Guillian Barre Foundation and the Myastenia Gravis Foundation will send free information out to your family and Drs if you request it. And it is free to get on the mailing list. The newsletter I give to my Dr because they always include information for the Drs in case there in an emergency. This has literally saved my life a couple of times.

inful_a01One last thing. Not all people get GBS from a shot. They can get it from a virus and other ways. If you are sick, please cover your mouth when you sneeze. Please wash your hands and stay home if you are sick. A person like me who has these problems can end up in ICU and completely paralyzed and worst case scenario die from what may seem like a harmless cold or flu. It can kill someone or make them very sick because people like me can’t fight the flu like everyone else and our immune systems can’t handle it. So be respectful and cover your mouth and wash hands. Stay home if you are sick. You don’t know who’s life you could save. I was in the hospital for 6 weeks, and 3 of those was in ICU because someone had the flu and didn’t think about not coming over to visit.

Terms:

  • Guillain-Barre syndrome is a serious disorder that occurs when the body’s defense (immune) system mistakenly attacks part of the nervous system. This leads to nerve inflammation that causes muscle weakness and other symptoms.
  • Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder characterized by progressive weakness and impaired sensory function in the legs and arms. The disorder, which is sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
  • Plasmapheresis is a process in which  the fluid part of the blood, called plasma, is removed from blood cells by a device known as a cell separator. The separator works either by passing the blood at high speed to separate the cells from the fluid or by passing the blood through a membrane with pores so small that only the fluid part of the blood can pass through. The cells are returned to the person undergoing treatment, while the plasma, which contains the antibodies.
  • What is IVIG? IVIG stands for intravenous immune globulin; it is a sterile solution of concentrated antibodies extracted from healthy donors which is administered into a vein. IVIG is used to treat disorders of the immune system or to boost immune response to serious illness, and to treat immuno-suppressed recipients of bone marrow transplants.1Antibodies are responsible for defending our bodies from pathogens, such as viruses and bacteria.
  • Myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body. The name myasthenia gravis, which is Latin and Greek in origin, literally means “grave muscle weakness.”

Sunday’s Best?

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1950’s Sunday Best

What is Sunday’s best? This has been a conversation that has come up a couple of times and I have been thinking on what Sundays Best really is. 

Sunday best is just fancy clothes you wear to church.

It can apply to any clothes that are your best and most dressy. It originated because Sunday was the only day that many working people wore such clothes, and they always were their best. These days, the dress standard is often more casual in many churches.

As I got thinking on it and I know it is one of those weird topics. Not sure even why I put too much thought into it anyhow. But, as I was thinking on it, Sunday Best could mean something different to anyone. For instance at our church people come as they are. You can wear jeans, shirt and I’m sure if someone came in shoe-less, they would be accepted. they may get a funny look or someone offering to go out and get them some shoes after the service, but they would be fine. To that person, what they are wearing may be the very best they have.  For me, I don’t wear dresses and I don’t wear heels. I would fall and break my neck. There are days when I can barely make it to church and what I have on is what they get. I don’t think God cares. 

For some time now, I have been thinking about checking out what happens in a LDS (Mormon) church. I have never gone to one of the services and I like to learn what goes on at other churches. What always stops me from doing that is I know in the back of my mind that you have to wear a dress. Some may not say it is important, but out of respect I know that is their attire for church. That is their Sunday best. And, I don’t plan on going out to buy a dress. When it comes to funerals, I never wear a dress. I do wonder how many people that may want to go to a certain church or business and they know they have to wear what they term as “Sunday Best” decide to not go for that simple reason. 

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Pastor Steepek

There has been a story of a pastor that was dressed up as a homeless man. This pastor was new to the congregation. The Elders of the church knew him but nobody else did yet. As he entered the sanctuary he was dressed poorly. He had ragged hair, dirty, no shoes and pushing a grocery cart down the isle and pretty much what you would think a homeless person would look like. As he walked up to the front and looked for a seat people looked at him in disgust. Nobody would let him sit by him, he was shunned. He eventually found a seat and the Elders went up to the pulpit and told the congregation that the new pastor was here and they would like to welcome him to the church. They looked around and didn’t see the pastor. After a minute or two, the seemingly raggedly dressed homeless man stood up and took the pulpit. He introduced himself as the new pastor and many in the congregation were left in tears. The pastor taught them that you can’t look at what the person looks like on the outside. We should consider the person and be willing to accept anyone, no matter what they look like, smell like, rich, poor, homeless or whatever.

ImageI do think that whatever somebody considers their best, then who are we to question that. a long time ago and I don’t think it is happening as much now. But it use to be if we would see someone on a motor cycle they had to be horrible people. That is far from the truth. They are normal people and there are even riders that are Christian that ride all over. CMA (Christian Motorcycle Association) is a servant minded interdenom-inational motorcycle ministry with a non-denominational message of hope and love through Jesus Christ.  They have helped over 11 million people accept Christ. They go and meet people that don’t always get a chance to hear the Word. 

Check out Christian Motorcyclists Associations Website 

Many Christian artists have long hair, in rock bands and if you look at them, you would think they were far from being Christians. Christians are suppose to be clean cut and presentable right? That use to be the case a long long time ago. Not anymore. We have groups that look like anyone else on the street. I think that is awesome. They don’t look like the Gaither Band or the quartets of old. I love to listen to many of these bands sing praises to the Lord. 

I will end this post just by saying that we can’t judge someone on what they wear, how they talk or smell. We need to look past that and find out who they really are and love them for them. We need to be example of Christ. Our Sunday Best may not be someone else’s Sunday best. 

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The Sheep and the Goats Parable-  Matthew 25:35-46

35 For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, 36 I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

37 “Then the righteous will answer him, ‘Lord, when did we see you hungry and feed you, or thirsty and give you something to drink? 38 When did we see you a stranger and invite you in, or needing clothes and clothe you? 39 When did we see you sick or in prison and go to visit you?’

40 “The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’

41 “Then he will say to those on his left, ‘Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels. 42 For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink, 43 I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me.’

44 “They also will answer, ‘Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you?’

45 “He will reply, ‘Truly I tell you, whatever you did not do for one of the least of these, you did not do for me.’

46 “Then they will go away to eternal punishment, but the righteous to eternal life.”